I should have played the lottery. I probably would win by now… Why?! Based on what?!
This is the second time I was diagnosed with a weird eye disease (first being a corneal ulcer, odds at 23 per 100,000). And when the doctors all call each other in just to see how interesting/what the hell it is, you know it’s special.
Right before Thanksgiving, I noticed that my right eye was a bit blurry. Sort of like if you looked up into a light for a while and there are dots floating there afterwards… except my dots don’t go away. Yes, I was literally seeing dots.
After being in the ophthalmology department for three hours, they finally diagnosed me with Multiple Evanescent White Dot Syndrome or MEWDS for short. The doctors (I went through FOUR that first day and few more in the follow up appointments) have no idea how it happens, why it happens, or how to cure it. They just know this occurs most frequently in healthy females between the ages of twenty and forty with severe nearsightedness, the lucky person may have just recovered from a cold or flu, the dots disappear on its own in four to six weeks, and it rarely comes back.
Needless to say, you know what I was thankful for last year.
Anyways, what do you do when there is nothing the doctors can do? Take pictures of my eye! It was a bit disturbing seeing pink and purple for a bit while they did the fluorescein angiogram. But I have to admit… the pictures turned out to be pretty cool!!
So this is what a healthy eye is suppose to look like…
And this is mine… As you can see the difference, uninvited dots/lesions decided to take a long vacation in my eye.
I started doing research to see if there was something that I could figure out that the doctors couldn’t as I know my medical history the best. I went on all the online forums and even joined a facebook group… it only had 23 members when I joined! Everyone said the same thing… no cure… no treatment… no idea why it happened. I felt really helpless as there was literally nothing anyone can do.
I guess it didn’t really sink in on how rare this was until my follow up appointment when the doctors told me that this only happens once or twice a year! They also asked if I was entrepreneurial and said I could probably make some good money by charging people to take a look at this rare occurrence! HA! I didn’t… but maybe I should have.
Four weeks later, I got the best Christmast gift ever.. A full recovery!